9.28.2008

"Whenever you are called upon to serve may I urge you to respond, and as you do so your faith will strengthen and increase...If you accept every opportunity, if you accept every calling, the Lord will make it possible for you to perform it. The Church will not ask you to do anything which you cannot do with the help of the Lord." President Gordon B. Hinckley

Mom returned to Salt Lake early this morning to fulfill her calling, she was able to make it back in time to attend their home ward. The Children's Sacrament Meeting Program was today and dad was able to listen from home.

Dave and I stopped by later this evening and shortly after we arrived Jeff and his family dropped by, McLean is on a one week leave and will return to Monterey, CA this weekend.

Dad continues to look strong, feel strong, and believes strongly that all will be well. This cancer storm is not our families first experience on the high sea, Dave, Michele and Steph have both experienced cancer with a parent, Mom has experienced cancer with a sister and a niece, and we have experienced cancer with friends and neighbors. However, at times we still find ourselves in un-charted waters. Storms are not always convenient or timely, they often catch us by surprise and sometimes unprepared. I am so thankful for a wise and skilled captain who at the onset delivered us to a safe harbor. With an anchor of hope securely in place our ship is safe and secure.

Our Missionary Blessings are abundant and we know that this storm can be endured if we travel hand in hand believing in the the promises of our captain.

9.27.2008

Michele and Madi stopped by to visit with dad this morning, Michele has been ill and unable to visit, it was good to see both of them. Mom is going to the Conference Center to fulfill her missionary responsibilities, this is the first time she has been back since dad's diagnosis. Dad and I rode downtown to get an ice cream cone, he then her returned home to start watching some of the DVD's we have taken over.

As I was watching mom prepare to leave today I felt strengthened by this amazing woman. I was especially strengthened by her commitment to her calling, she was going and doing the things the Lord has commanded knowing that our Heavenly Father would provide the way for her to accomplish the demands of all that is on her plate. I stood in the doorway of her bedroom admiring the peace, confidence, and extraordinary strength she was exhibiting when the following Hymn came to mind:

It may not be on the mountain height

Or over the stormy sea,

It may not be at the battle's front

My Lord will have need of me.

But if, by a still, small voice he calls

To paths that I do not know,

I'll answer, dear Lord, with my hand in thine:

I'll go where you want me to go.

Being in the service of their fellowmen remains a priority with our parents, although dad is unable to serve on site he continues to serve via the phone. Dad is in constant contact with the individuals he and mom work with at the Conference Center, they continue to organize and facilitate special events for church leaders and organizations, and their hearts are full of sincere desire.

The weeks prior to General Conference mom and dad's schedules are always full of several events, training, broadcasts and meetings, it is inspiring to witness our parents desires to go anywhere, do anything, for however long the Lord requires; our parents continue to dedicate their lives to the Lord's work.

So trusting my all to thy tender care,

And knowing thou lovest me,

I'll do thy will with a heart sincere:

I'll be what you want me to be.

As I watched mom pull out of the garage I was humbled by her trust and faith that everything would be okay while she was away, our mother knows that her Father in Heaven loves her. I will be eternally grateful to my parents for their examples of faith, commitment, and desires to be all that He wants them to be.

9.26.2008

Dad was up bright and early to perform his morning exercise routine. I arrived later in the afternoon to take dad to his final radiation treatment of this week, Dad continues to handle his radiation and chemo like a champ. As we were driving home he commented "we have two days off". Dad has been reading, studying and resting as needed.

9.25.2008

Mom's phone rang early this morning, on the other end was Dr. Henry S. Friedman's assistant, WhAt?!? He indicated that Dr. Friedman was out of town this week but he wanted to make sure that we were contacted. I could not believe this was happening as it has not even been 24 hours since I sent the e-mail. Dr. Friedman's assistant was aware of dad's case and wanted to know how they could help us, mom explained the treatment that dad was receiving and how dad was doing. Dr. Friedman's assistant assured mom that we were doing exactly what was needed and that the protocol dad is following is the same as Dr. Friedman would order.

Mom discussed with him a couple of new medications we had been researching and he provided encouraging feedback. Mom was instructed to contact Dr. Friedman's office at any time and was told that they would see dad at Duke University Medical Center if recurrence of the tumor presents itself and/or we desire to seek more aggressive treatments.

"We know that a brain tumor is unlike any other disease. We take an aggressive team approach to find answers and provide hope. We play to win. We want survivors."

Dr. H.S. Friedman, M.D.

Dr. Friedman's positive attitude permeated through our family today, his aggressive nature is clearly paying off as Duke will be opening it's first cancer survivor's center next year. If there are enough long-term survivors to create a survivors clinic he must be doing the right thing. It is evident that we continue to be blessed by the best.

Dave and dad went on their morning walk, dad leading the way with tremendous courage and remarkable strength. I was able to visit with Dr. Clark while dad was receiving his radiation today and once again he commented on how incredible dad is doing, he thinks that dad looks "three times stronger" each time he sees him. Dad must now have weekly blood draws to check his counts, following radiation he and I headed to the lab to have blood drawn. I had lab work that I had been putting off having done so I figured we may as well do it together. Dad had one vial drawn and I had nine, dad joked that he would be driving me home today. Following our donations of red we went for a little ride before returning home.

One of the most difficult aspects of this adventure is dad's driving restrictions, he is not allowed to drive for several months due to some of the medications he is taking, this is hard. For an outgoing and independent individual such as dad, being restricted from driving is challenging to say the least. Dad is very used to his own routine and schedule, he is now limited at being able to come and go when he needs and is pretty much confined to the house/yard. Mom came home this evening and they took a little ride downtown to get something to eat, mom was going through the drive-thru but dad insisted on going inside. As hard as we are trying to keep dad from being exposed to germs and illness we realize being stuck in the house, unable to drive and away from people is a whole lot harder! Patience.

9.24.2008

Dad continues his morning exercise routine of treadmill, bike, and a brisk walk outside with Dave. The new anti-nausea medication is doing it's job which has provided mom and dad with restful nights. Thank you Zofran.

I took dad to radiation today, I was just getting settled in to my reading material and out came dad, finished! I obviously was not used to this routine, I am accustomed to waiting, waiting, and more waiting. Thank you Dr. Clark and staff.

Our search for increased knowledge, options and treatments continue; Dr. Henry S. Friedman's, name had been mentioned at one of dad's appointments and my interests were peaked because I recognized his name from some of the research I had been doing. Dr. Friedman is an internationally recognized neuro-oncologist with a career-long interest in the treatment of adults with brain and spinal cord tumors. Dr. Friedman is the Deputy Director of The Preston Robert Tisch Brain Tumor Center at Duke University Medical Center and is aggressively pursuing new therapeutic strategies of glioma's (dad's tumor type). Dr. Friedman is known for "the finest research lab in the world", which produces clinical trials that rapidly go from the lab into the clinical trials.

The impressive credentials of Dr. Friedman were somewhat intimidating as I contemplated contacting him, however, it is his positive attitude and belief that cancer can be cured that ignited my courage and will to send him an e-mail. I will be anxious to see if we receive a reply.
Thank you Dr. Friedman for being a believer.

9.23.2008

Dad was up bright and early this morning walking on the treadmill and riding his bike, this is inspiring considering that only a few short hours after taking his chemo at bedtime the toxicity of this life saving agent had interrupted mom and dad's sleep with nausea and vomiting. Dad assured mom that he was feeling "great" this morning.

Dad had a follow up appointment with his Family Physician this morning which went well. Dad had a Water Conservancy Meeting that he insisted on attending prior to his radiation treatment later this afternoon. Mom took dad to the meeting and waited in the car.

Treatment #2 took place without incident, mom and dad were able to meet with the Radiation/Oncologists PA today and were given an additional anti-nausea agent for dad to try. The PA also wanted to discuss with mom and dad further options available to them, she also commented on Dad's "Performance Quality" and was ever so encouraging as she mentioned several promising studies on the front lines for Glioblastoma Cancer.

At both of Dad's appointments different individuals mentioned how good Dad looks and how shocked they are that he has undergone all that he has over the past two weeks. Our father is proving to us that statistics are based on yesterday's patients not those of today and tomorrow, he is our triple AAA patient:

Awareness-Dad is aware of his purpose and meaning in life
Acceptance-Dad not only has accepted the opportunity to endure this trial he has embraced it
Attitude-Dad is in this to win it...we are too

We are so grateful that dad is proving to all of us that attitudes are more important than facts.

9.22.2008

Dave took dad to his final Rehab session this morning, Dad has been released from Rehab due to his high performance and progress. He will now do physical therapy at home by walking on the treadmill, walking outdoors (weather permitting), and riding his stationary bike.

Mom came home and took dad to his first of 30 radiation treatments. They were in and out in less than 30 minutes, when I went over later this evening dad looked great and was pleased with how it all went. Dad will begin the oral chemo tonight, our prayers are for minimal side effects and a restful nights sleep.

We are discovering that today's little pleasures and accomplishments are the events that make up our lives. We are learning to forget about the "what's" and "why's" of yesterday, look forward to tomorrow with anticipation and savouring each treasured moment of today.

Mom and Dad's core strength never ceases to amaze us. Their positivity affects everyone around them, this in turn affects the current situation we are experiencing. They are teaching us that a positive attitude, positive thinking, positive actions and optimism leads us to the good life. Today, life is good.

9.21.2008

Marty took dad for a ride up to the pasture today, he had not been there in nearly two weeks. Dad enjoyed the short time he was able to spend at the pasture, just being in the fresh air surrounded by his animals proved to be good medicine.

Dave, Anthony, and I went over and spent the afternoon visiting on the back patio with mom, dad, Marty and the girls. Jeff, Steph, Tucker and Peyton came later in the afternoon to visit.

Dad continues to gain physical strength each and every day, if one was not aware of dads condition you would never even know he had just undergone major brain surgery. Dads optimism continues to feed his perseverance, good health, and quick recovery from trauma; his hope is contagious.

I was reminded this weekend of a statement that mom and her mother would often say while we were growing up, it was usually used when we were being sassy or adventurous, I can still hear one of them saying "you are getting a little too big for your britches" . As I was reflecting on the events of the past two weeks I thought to myself "we must not be too big for our britches because our Father in Heaven has given us another trial to grow from. This life was never intended to be easy, it is a period of proving and growth. Each of us will be blessed with difficulties, challenges, and burdens and it is up to us to embrace the opportunity for growth and development. Conquering adversity strengthens our character, increases self-confidence, and raises our self-respect all while promising success in our righteous endeavors.

"And all these things shall give thee experience, and shall be for thy good." D&C 122:7

Bishop Rose has arranged for dad to be able to listen to church at home and also arranged for the sacrament to be brought in. Mom and Dad have received beautiful cards full of encouragement, love and prayers, yummy cookies from Achievement Day girls, floral arrangements, and sweet phone calls. Thank you for your tender mercies, we are richly blessed.

Marty and the girls left this afternoon, we cannot wait until they are able to come again. Teri and Samantha were greatly missed. Marty worked hard this weekend accomplishing all that was on his "To Do" list. Shelby and Sydnee were great company as well as super help around the house.

Dad and I organized all of his medications today, he is taking well over a dozen different ones each day. Managing the dose and time is a full time job, I don't know how he does it.

Dave, Anthony and I stayed and visited with mom and dad until it was time for bed. Tomorrow is a big, big day. Remaining rested, healthy, and free from illness is key.

Dad continues to teach us daily that the reason for adversity is to accomplish the Lord's purpose for us in this life. As we are learning, growing, and developing we are loving harder than we ever have before.

9.20.2008

Marty, Shelby and Sydnee arrived late last evening. Sammie became ill part way through the trip so Teri had to turn around and return to Boise with. Mom and Dad were excited to see the girls and Marty had a full agenda of jobs to get done. Dad rode with Marty to Fairview this morning, he enjoyed the ride and the opportunity to see the Fall foliage.

Anthony arrived later this evening and we threw him a Surprise Birthday Party in mom and dads backyard. We spent many hours eating roast beef dinner, laughing, playing and enjoying one another. If what scientists are saying is true about laughter extending ones life, we are going to live a long, long, time. It has been proven that laughter has an immediate and direct affect upon our heart rate, temperature of our skin, blood pressure, breathing rate, brain activity and finally, the way our body handles disease through activating our immune system and fighting infection. Humor was definitely on the menu for this weekend and Anthony and Marty delivered.

Next time you are feeling stressed:

Call Anthony or Marty

Sit by mom when Anthony and Marty are on a roll

Laugh

Take a different perspective and try humor

Tell a joke

And when you look in the mirror and see those lines around your eyes, remember, they are lines of laughter. Today is good, we are living an "Ever-Laughing Life".

9.19.2008

Dave spent the morning with dad enjoying another walk in this beautiful Fall weather. Dad is exhausted from his long day yesterday and will enjoy being able to take it easy and rest today. Maigan was able to talk with dad on the phone today.

Mom took dad for a little ride downtown to pick up a few groceries and dinner, dad was craving a chicken alfredo pizza.

We are anxiously awaiting the arrival of Marty, Teri and these three beauties, they will be here late this evening.

As we are each gaining new knowledge in the cancer arena we have been thrown into I have found the greatest source of learning and education has come from observing my father and the manner in which he has embraced this current challenge. Even in the darkest of hours dad continues to focus on the goodness surrounding him, with this attitude he has created an environment of hope and peace.

I began to notice dad's optimistic and hopeful state of mind while he was in the hospital, I did not realize at the time that my thoughts were being reshaped. I observed dad on a daily basis saying "Thank You", for everything whether it be big or small, painful or pain free, delicious to the taste or "fowl" to the taste, repetitive or new Dad expressed his gratitude daily and continues to do so. Each day I am discovering more and more to be grateful for. Dad's smile is always present even at those times when he could not possibly feel like smiling. I now find myself smiling and searching for new reasons to smile each and every day. Dad has taught me that reshaping your thoughts is a whole lot easier than reshaping your body and takes a lot less time, effort, and energy.

If we want the Lord to sustain and help us gain strength during our trials we must be willing to do the things he has counseled us to do.

"Be of good cheer, little children; for I am in your midst, and I have not forsaken you." D&C 61:36

Like dad I am going to express gratitude each and every day, this thought alone gives me a reason to smile.

9.18.2008

Michele

Michele came and stayed with dad this morning until it was time to go to his appointment with the Radiation Oncologist, we are so blessed having this angel in our lives. Dad and Michele took a long walk this morning up around the Stake Center and back home.

Dad and I met mom at the hospital for dad's first appointment of the day. The Radiation Oncologist informed us that dad will be starting his treatments Monday, September 22, 2008 and will receive 6 weeks of radiation 5 days a week, way ahead of schedule. He will also be taking an oral chemotherapy agent in conjunction with the radiation therapy. The side affects of both treatments were explained in detail and all questions were answered. Dad is anxious, excited, and ready to begin. Being a little more tired, nauseous (controlled with medication) and losing your hair are minor compared to the outcome we are each hopeful for.

We then jumped in the car and headed over to UVRMC in Provo to meet with the Medical Oncologist. More details regarding the chemotherapy were given, prescriptions for antibiotics, steroids (for swelling), and dosing instructions were given. Dad will have weekly blood draws to keep track of his counts and will see the Medical Oncologist every other week as long as no complications arise. We also discussed in length the possibility of more trials opening up since the two we were interested in are now closed. Patience, Patience, Patience. Chemo drug was ordered, blood was drawn and we were off to Dr. Gaufin's office.

The 34 staples (train tracks) that have rested upon dad's head since 9/6/2008 were removed without difficulty today. We will go back to Dr. Gaufin's office at the end of the month for a post surgical consult. Downstairs we went for our last appointment in Radiation/Oncology.

The Radiation Oncologist had ordered a CT with contrast today so that they can merge today's scan with the scan taken prior to surgery, this will help them map out the radiation plan for Monday. Dad also had a mesh mask formed to his head and face that he will wear during each radiation treatment, this mask will be bolted to the table he is lying on so that his head will stay still during his brief treatments. After a quick stop at the scheduling desk we were finished!

Dad's Radiation Oncologist told us today that he treats a great deal of patients and that he can tell immediately how well a patient is going to do on therapy. He told us that when he saw dad walk into the clinic today he could see that dad had "Performance Quality" this indicated to him that dad was going to do very well and would respond to treatment due to his high "Performance Quality". Dad's great positive attitude, peace, and numerous miracles are recognizable, it's what some medical professionals are referring to as "Performance Quality" these days, that's our dad.

The upcoming treatments are going to leave dad tired, weak, his immune system suppressed, and his appetite decreased. Our job as his care givers is to remain strong, healthy, well rested, encouraging, and germ free. Please Stand Up and join us in our efforts to keep our dad well.

We dropped off the new prescriptions at the pharmacy on our way home, mom and dad are looking forward to a nice, quiet evening in the comforts of their home.

Note To Self: Don't wear heels when accompanying dad to doctor's appointments, he runs, you can't keep up.

9.17.2008

Our goal at this time is to keep our family healthy, well and strong as we head into battle. Most importantly, we must keep dad physically strong, and infection free so that his immune system is ready for chemo and radiation. We acknowledge and appreciate the love and concern each of you have expressed and want you to know that we are strengthened and uplifted by your kind words, acts of love, fasting and prayers. At this time we are asking that immediate family members only be allowed to visit with dad. If you would like to send a note or card please do, mom and dad are enjoying them so much. We love and appreciate each of you for standing steadfast with us.

Dave spent this morning with dad, they enjoyed a nice long walk in the beautiful fall weather and then returned home. Mom took dad to his physical therapy appointment where they worked dad long and hard, 20 minutes on the treadmill, 15 minutes on the bike, and then time on the roller bed. Dad also worked on his balance where he scored 57/57.

Dave and I walked over later in the evening to drop off some movies, dad was on the phone with Gentry in Atlanta, Georgia! Gentry had received special permission from his Mission President to call Grandpa and encourage him to stand strong (I think they ended up encouraging each other). Dad was exhausted after a long day of exercising, he is looking forward to a good nights rest.

9.16.2008

"Heaven is under our feet, as well as over our heads".

Dave arrived at rehab bright and early this morning to acquaint himself with dad's routine. By 11:00 a.m. dad had completed speech, occupation, and physical therapies, packed up and was ready to head home. Mom arrived to receive all discharge orders, prescriptions, and the patient. They were out of there!

After a quick stop to pick up newly prescribed medications, a sandwich from Parker's Drive-In and a drink from Harts, dad was finally in his Home Sweet Home.

Later this evening Dave and I took over salmon dinner and enjoyed eating and visiting with dad at the dining room table rather than in a hospital room. Michele and Tanner arrived shortly after so that Tanner could interview Grandpa for a school assignment he is working on, it was fun to look through dad's old photo albums discovering who certain family members get their looks from. It is obvious we are related.

Following dinner we were reviewing the medical records that mom had obtained upon dad's discharge, while reading one of the reports it was noted that one of dad's heart tests done prior to surgery had come back favorably higher (by 15%) than anticipated, the doctor dictating the report had stated "patient has resolving congestive heart failure". Reading this report sparked a conversation in regards to the many miracles we have witnessed over the past 12 days. First, the fall that dad suffered back in August, had he not suffered this fall in the mountains we may not have responded so quickly when symptoms presented. Second, the expeditious response of dad's medical team. Third, Dr. Gaufin's ability to do a subtotal resection (partial removal) of the tumor rapidly growing inside dad's head. Fourth, the amazing recovery dad has experienced. Fifth, treatment options. Sixth, the remarkable care dad has received. Seventh, the abundance of peace, prayer, and faith encompassing each of us daily. Eighth, "resolving congestive heart failure". Ninth, mom's incredible insurance benefits paying for lifesaving treatments. Tenth, dad says it best "I have had no pain, no discomfort, I have been highly blessed."

After witnessing the above miracles, and these are just a few, we can never underestimate the power of our Father in Heaven, even when we ourselves feel powerless. We know that our Heavenly Father is able to do all things, if we are faithful to him.

Our ship has been tossed about in this turbulent storm of cancer yet dad continues to teach us that through faith, prayer, and obedience this ship can handle any test.

Whether the wrath of the storm-tossed sea
Or demons or men or whatever it be,
No waters can swallow the ship where lies
The Master of ocean and earth and skies.
They all shall sweetly obey thy will:
Peace, be still.

This storm we bear is not our own, through the Savior's infinite peace we have discovered a safe harbor, our ship is calm despite the crashing of the waves around us. "The winds of tribulation, which blow out some men's candles of commitment, only fan the fires of faith of others." Neal A. Maxwell

Our father's flame is burning bright, he is committed to standing up and fighting...so are we.

9.15.2008

Mom returned to work today while dad spent an intensive day in rehab; a full day of hard work in speech therapy, occupational therapy, and physical therapy helped to pass the hours.

Mom received a phone call at work indicating that dad would be discharged to home tomorrow morning. We were so excited, yet no one was more excited than dad. Discharge coordination had begun along with a few preparations at home, we are ready for dad to come home.

Mom spent the evening with dad, they walked downstairs to see Peyton's new car that she had driven down to show them. Art Linkletter once said:

"Things turn out best for the people who make the best out of the way things turn out."

There are a lot of things in this lifetime that we will not be able to control, one thing that we are able to control is our thoughts. Two individuals can face the same challenge but depending on their attitudes regarding the situation each of them can have different results. Irregardless of our trials we are able to control the thoughts going on in our heads, we can choose to have a positive attitude or a negative attitude.

Studies have proven that a positive attitude will help the human body heal faster from illness, we have witnessed this to be true with our dad. Technically, dad should still be on the 4th floor preparing to go to rehab for 10-12 days. We not only skipped the 4th floor completely but we are taking dad home after only 5 days of inpatient rehabilitation.

Dad has commented several times during his hospitalization "I am healing so quickly because I was in good physical shape when this whole thing started." This is so true. However, dad has also demonstrated an incredibly optimistic and positive attitude regarding his diagnosis and the journey before us. Thank you dad for showing us how important the mind-body connection is and that our mental and emotional attitudes do influence our physical health and for proving that "A cheery heart doeth good like a medicine."

Farewell UVRMC and thank you for everything, we'll visit you on an outpatient basis.

9.14.2008

Mom, Dad, and I attended Sacrament Meeting today in the hospital chapel; I have always loved playing the piano in our local hospital branch and today found myself feeling abundantly blessed to be sitting there with my sweet parents. The chapel of the hospital is located just a few yards from where we spent many long, anxious hours one week ago today, walking to and sitting in the chapel with dad 7 days later is nothing short of a miracle. The small room was nearly full to capacity and the strength and love of those unseen was clearly felt this morning.

A granddaughter and grandfather from Orem spoke on hearing and heeding promptings of the spirit, how timely and appropriate. Had someone told them that I needed to be reminded of this powerful principle? Something I have personally learned over the past month is that when you feel a prompting swell within your heart, act upon it. You will be grateful you did. As dad's August 25th birthday was approaching I felt the need to plan a dinner in honor of the day he entered this world, I will forever be grateful that I did not ignore the whisperings in my heart that day. As we sang the closing hymn "As I Search the Holy Scriptures" I felt strong knowing that we have all we need to stand strong, brave and believing for we have the power of His love, knowledge in His words, and the care and stewardship of many.

Dad was not excited about eating another "fowl" meal and was still plenty full from yesterday so I cut up some fresh fruit and fresh tomatoes for him to enjoy. Dave, Matt, Michele and their kids arrived later in the afternoon to visit with dad. Dad walked from his room to the dining room to greet the kids and when he saw them he said "this is just what I needed, to see you kids". It was what we all needed; they are beautiful, healing, loving, fun, and unconditional. We took a walk outside and found a shady spot to sit and visit, Steph and Jeff joined us and we made the walk back to dad's room. Dave, Matt, Michele and the kids left and dad ate some dinner that Jeff had prepared. After Jeff and Steph left I prepared dad a bowl of fresh peaches and ice cream while he was taking a shower. Dad has had a great day, we are hopeful he will rest well tonight.

As the last of Summer days quietly slip away we find ourselves in the richness of a new season, the days will be cooler, shorter and filled with the grace of golden nature. We are currently experiencing a season unlike any we have experienced before, however, one thing that we know for sure is that our Father in Heaven stands ready to comfort and counsel us in our season of struggle and suffering. Our challenge is to be willing to be introspective about ourselves and look to him with a firmness of mind, and pray with exceeding faith.

President Hinckley admonished us that "this is a season to be strong, it is a time to move forward without hesitation, knowing well the meaning, the breadth, and the importance of our mission. It is a time to do what is right regardless of the consequences that might follow. It is time to be found keeping the commandments. It is a season to reach out with kindness and love to those in distress and to those who are wandering in darkness and pain. It is a time to be considerate and good, decent and courteous toward one another in all of our relationships. In other words, to become more Christlike."

Our lives have been blessed with two exceptional Christlike examples... our parents. They are the most kind, loving, considerate, good, decent and courteous individuals we have known. Through our parents examples we are invigorated, renewed and determined to stand up and be strong; we invite each of you to stand up with us and be believing.

9.13.2008

I arrived at UVRMC Rehab bright and early to observe dad in each of his therapy sessions, in speech therapy he was tested in visual, memorization, and sequencing; he passed each test with 97-99%. Once again, the therapist kept needing to clarify that he had been less than one week post surgery, dad's will and strength are obviously uncommon in this neck of the woods.

We then moved on to physical therapy where we were able to enjoy the beautiful remnants of the last days of Summer. Dad took the physical therapy tech and I on a long walk around the hospital campus and then back inside for more intensive exercises. We then headed upstairs for Olive Garden lunch, compliments of mom and an afternoon of football. Thank you BYU and
U of U providing us entertainment on this beautiful Saturday afternoon. I returned later that evening with a roast beef dinner for mom and dad, today was a great day of healing, exercise, eating, and football. Dad commented over and over today at lunch and dinner "finally, some food with taste to it".

Mom left to go home and I stayed with dad while he prepared for bed and to get him settled in for the night. As the lights in the halls of the unit dimmed, nurses hung out at the nursing station at the ready for a patient to call, all was silent except for the humming of the air conditioner and the rhythmic beeping of numerous monitors throughout the unit; my mind fell into deep thought as I began to wonder once again "why is this happening to this amazing man has he not been through enough?" I was gently reminded that each of us must face trials because our Heavenly Father loves us and the test of our loving Father in Heaven is not to see if we can endure difficulty; it is to see if we can endure it well. Our amazing parents have proven that they not only can endure difficulties but they endure them well; they remember our Savior Jesus Christ at all times, keep the commandments regardless of opposition, temptation and circumstances surrounding them, and when things are tough they are determined and all believing that He will help them find the strength to carry on.

Through two heart bypass surgeries, stent placement, heart attack, pacemaker/defibrillator placement and now a brain tumor our father has demonstrated that struggles are part of the sacred sanctification process.

"My people must be tried in all things, that they may be prepared to receive the glory that I have for them." D& C 136:31

I have come to see that the recent challenge we have been asked to face is not for our parents it is for each of us, individually and collectively. How ever great this challenge may become our father and mother's needs are going to be significant. Our strength must be valiant and steadfast, each of us must stand tall, stand strong, stand faithful, and stand believing for there are miracles to witness, a journey to travel, and a marvelous mission to fulfill. Through His strength we can do all things, have hopes realized, and be witnesses to the growth and development of our own infinite strength.

9.12.08

Tube free: check
Activities of Daily Living: check
Speech Therapy: check
Occupational Therapy: check
Physical Therapy: check
Walk outside: check
Matt home safe and sound: check
JCW's Fish and Chips for dinner: check

As one can tell dad has had a busy, busy, first day in Rehab and passed with flying colors! Each of his therapists, nurses and techs cannot believe that he is less than one week post surgery doing so well, we can as we have seen it before.

The "fowl" meals continue despite promises of a meeting with the Dietitian. When asking dad last night if anything sounded particularly good to him he stated that he sure would like some "fish and chips from JCW's". This request was an easy one to fulfill, a quick visit thru the drive-thru and I was on my way. Following three pieces of halibut, some onion rings and a nice diet coke with lemon we had one happy dad, mom and daughter. Fresh peaches and ice cream were on schedule for dessert later in the evening but due to high blood sugar (medication induced diabetes) we had to put the peaches and ice cream on ice for a later date. Maybe tomorrow.

Matt and Michele came to visit this evening delivering a handmade card and picture from Madison. Matt reported on his business trip back East and his visit to Liberty Jail, we are happy he is home safe and we know Michele and the kids are too. Dad was able visit with Gordon on the phone this evening and in closing he joked with Gordon by saying "Gordon, I won't be able to substitute in the temple for you on Tuesday morning."

Over this past week mom and dad have shown us that in order to gain strength in our struggles our perspectives of the plan of salvation must be positive. Throughout our lives mom and dad have demonstrated and taught their children that they realize, believe, and trust in a personal Savior whom we too can trust and turn to in our times of need. We have also been shown how to live the principles that our Father in Heaven has provided us in order to receive the strength needed during personal times of struggle. How grateful we are for loving parents who continue to teach, guide, and direct through perfect example and selfless love.

Our parents are exemplary people and the countless phone calls, words of encouragement, love, and kindness are reflective of how loved, respected, and revered they truly are. Mom and dad continue to stand strong proving that their source of strength in meeting each of our challenges remains the same; faith in a loving Father in Heaven.

9.11.08

Contrary to the constant rumblings that dad would be moved to the 4th floor prior to being discharged to Rehab our amazing patient has skipped a level of care and was discharged to Rehab four days post surgery. That's our dad.

Mom had to travel to Fairview early this morning to finish up the rental agreement with the new tenants so Dave spent the morning with dad helping him collect his belongings and transitioning into his new room. Big Dave removed most all of dads tubing this morning prior to he and Tall Dave walking with dad to the south end of this medical metropolis. Mom arrived shortly after the move where rigorous assessments began. Speech Therapy, Occupational Therapy, and Physical Therapy will begin tomorrow with two sessions per day, dad will have one hour for lunch and then get back to work.

The nursing staff invited dad to go down to the dining room for dinner and dad declined stating "no, thank you I do not have a tux". Dad's great sense of humor and quick wit has helped each of us smile during those moments when it has hurt the most.

I went over after work and spent the evening with mom and dad getting acquainted with dad's new routine and new room. Dad has been able to visit with McLean in California and Anthony in Boise on the phone this week which has been good for each of them. Thanks to friends and family everywhere, near, far, from here to there; we are consuming the love and daily prayers offered in behalf of our family. Prayers have tangible power, we feel each and every one of them and know that the peace embracing us at this time is due to your continued prayers and love. All of us love all of you.

9.10.2008

Today was a good day for dad, walking with Big Dave to the shower, a long, warm shower, removal of head bandage, and the shaving of dad's head.

Mom spent the day watching over dad as he rested, met with Physical Therapy, and coordinated rehab for dad's big move tomorrow. Everyone involved in dad's care is amazed at how quickly dad is recovering from major surgery, we knew he would; he is our Superman.

Dave and I arrived later in the evening to see dad debut his evening meal consisting of chopped turkey gravy over potatoes, green beans, roll, orange jello, juice, and a lemon bar. As dad has said many times while here "another fowl meal".

Dad's new look is quite handsome, we brought him a black Under Armour skull cap to keep his head warm and a baseball cap for when he goes out. He tried them both on and we were all in agreement that he couldn't look tougher. Kendall was his nurse for the evening and Tane was back to sit with him throughout the night. We have the itching and hiccups under control, a nice back rub to end the night, things are calm here in IMC.

Despite the severity of dads condition we feel that we could not be in a better place or time for this challenge to occur. We have an incredibly strong, talented, skilled mother who continues to hold a full time job; through her continued employment she has been able to maintain wonderful insurance which enables our father to receive lifesaving treatments and excellent care. We have a father who is capable of making difficult decisions in times of crisis. We have a medical team of skilled professionals who listen, care, love, and serve our father with the latest and greatest of technology. We have countless friends and family who are praying, hoping, and fighting along with us. For having it bad we have it pretty good. We have every thing we could wish for... except our father has cancer.

Our goal at this time is to keep our family healthy, well and strong as we head into battle. Most importantly, we must keep dad physically strong, and infection free so that his immune system is ready for chemo and radiation. We acknowledge and appreciate the love and concern each of you have expressed and want you to know that we are strengthened and uplifted by your kind words, acts of love, fasting and prayers. At this time we are asking that immediate family members only be allowed to visit with dad. If you would like to send a note or card we will see that dad receives them. We love and appreciate each of you for standing steadfast with us

9.9.2008

Less than 48 hours post major brain surgery dad was moved back to IMC, remarkable. He has been up walking today, received respiratory therapy, eating solid foods, keeping pain under control, itching, and battling the hiccups...still. Mom, Marty, Teri, and Michele spent the morning with dad helping him get adjusted in his old room in IMC. Dad is in good spirits today, alert, aware and engaged in all conversations. Big Dave is his nurse today, we like him and it is obvious how much he likes dad. Mom's boss stopped by today to visit with her bringing with him a fun gift basket from her office filled with some of dad's favorite things. Uncle Rex and Beth also came by to visit with mom.

I arrived early in the afternoon to be able to be there when the Radiation Oncologist arrived. Michele left to get home to be with the kids and Marty and Teri prepared to leave for Boise. Goodbyes are always hard, today they were especially difficult for each of us.

Since Dr. Gaufin's preliminary diagnosis family members have been researching, investigating and exploring treatment options for dad. We were anxious to meet with the newest members of dad's medical team; a Radiation Oncologist and Medical Oncologist. We first met with the Radiation Oncologist and were grateful we had done our homework. The pathology had come back and it was as suspected Glioblastoma Multiforme, a very aggressive form of brain cancer. We were informed that during surgery Dr. Gaufin was able to remove some of the tumor which we did not think he was going to be able to, this was encouraging. This particular type of tumor responds to radiation and recent studies have shown that it responds even better to a combination of radiation/chemo. Options for treatment were explained to dad as well as the possibility of participating in a clinical trial. Dad did not hesitate when giving his answer as to what direction he wanted to take, "we will do treatment and we will participate in the trial, it is maintenance therapy for my heart that has kept me doing so well this long".

Dad will need to recover for two weeks and then radiation/chemo will begin. Treatment will be five days on two days off. Treatment will be done on an outpatient basis and the best part of all is that he will be able to receive treatment at the Hope Cancer Treatment Center at American Fork Hospital. As dad said "just another tender mercy".

Mom, Dad and I then met with the Medical Oncologist, he discussed the medical aspect of dads treatment and educated us more on the clinical trials available to us. We are excited that dad's Medical Oncologist is a Huntsman Cancer Institute Physician and also helps make decisions on what clinical trials will be made available to patients, we are so lucky that there are currently two trials that dad could possibly meet the criteria for. We feel we are in good hands. Once again dad reiterated that "we are going to do radiation/chemo and the maintenance trial". Both physicians were very encouraged and impressed with dad's recovery and were so pleased with how well he is doing. They commented that he is doing "remarkably well".

Dad is happy with his medical team and comments several times a day what good care he is receiving. Dad ate well tonight and is tolerating solid foods once again. Kendall is his nurse this evening and Stacie will be sitting with dad throughout the night. Big Dave had to change dad's IV from his right arm to his left before shift change, dad tolerated this well. PT has walked dad two different times today and instructed dad on hand and arm exercises for his left arm, his walking improves each and every day. He is a strong, strong man; this is our dad.

Mom had a doctor's appointment later this afternoon and we encouraged her to stay home and not return to the hospital. Bishop Rose stopped by for a brief visit, we are so blessed. Dave and I stayed with dad for the evening, visiting, resting, laughing, and striving to make dad comfortable. Staying on top of the Benadryl is key, back rubs with lotion for relaxation, deep breathing for the hiccups, and fresh peaches with milk for a late night snack. All is quiet here on the hospital front.

As I was driving home this evening reviewing the events, conversations, and news received from today I thought of how many times I have heard a young couple announce "we are pregnant" or "we are buying a new house". I observed today that Dad used the plural when he announced his decision for treatment "we will do treatment, we will participate in the maintenance study". This touched me deeply. There is no 'I' in this experience; only a 'we'. That sums it up, it is we who are standing up 2 cancer, it is we who are battling and fighting this battle, it is we who will be steadfast, immovable and bear with patience this trial.
Thank you mom and dad for allowing each of us to be a part of your 'we'.

9.8.2008 ICU

Dad spent today in ICU with mom, Michele, and Dave by his side the entire day. He has been awake, talking, and even went for a short walk with great assistance. We have discovered today that dad is terribly allergic to Morphine and the itching has begun! Jeff stopped by later in the afternoon as well as Uncle David and Aunt Gayle. I arrived later in the evening to assist dad with his dinner and was able to get him to eat his jello, a cup of chicken broth, and a diet coke with lemon. For some reason dad has a terrible case of the hiccups and we can only imagine how painful this must be considering the large incision on his head and major surgery he just underwent. Respiratory therapy, pain management, and Benadryl are our friends today.
Marty and Teri went to Fairview today to take care of the house and yard, dad has been worrying about getting the house rented out this week, we are so grateful to them for doing this so that dad does not worry. Matt had to go out of town on business and will return later this week.

For all the down sides of being told your loved one has cancer, it does have the positive effect of bringing people in our lives closer to us and us closer to them. This is something we genuinely treasure, friendship truly is forged from the hard stuff.

This is where our story of cancer begins...

Dad 8/25/2008

His 72nd Birthday Party

September 5, 2008 was a landmark day in the life of the Stand Up To Cancer Campaign just as September 6, 2008 was a landmark day in the life of of the Kent and Marietta Evans family.

Dad was admitted to UVRMC (IMC) in Provo, Utah on Thursday, September 4th due to abnormalities found on a CT Scan that had been done earlier in the day. An MRI was recommended for further studies but due to dad's pacemaker and heart defibrillator the Cardiology team were not comfortable with this being done; a CT with contrast was ordered and would be done early Saturday morning. Following discussions with the Neurologist it was felt that there were two areas of concern the first being a large area of swelling on the right side of dads head which was felt to be due to the fall dad sustained while horseback riding in August, the second area of concern was a shadow between the mid line of the brain.

The CT with contrast was accomplished Saturday morning and our worst fears were confirmed, our husband, father, grandfather, brother, and friend has a brain tumor. We were shocked, the doctor was shocked and we now found ourselves standing on shaky ground.

Medical personnel did not stand still as plans immediately began to coordinate the surgical team so that a brain biopsy (craniotomy with biopsy) could be obtained, several medical aspects had to be covered due to the complexity of dad's heart condition. EKG's, Kidney and Heart Sonograms, blood work, and Cardiac consults all needed to be completed prior to surgery; we were finally on schedule for Sunday at noon. Our legs are still shaking but our hearts continue whispering "peace" and "patience" for these are the words that filled the little corner ER room on Thursday evening as Matt and Dave gave our father a most beautiful and promising priesthood blessing.

When dad was not undergoing testing he was busy visiting with members of our immediate family who were there with mom and dad the entire day. Dad's appetite has been better than it has in weeks, we are anxious to bring him anything and everything he will eat. After seeing a commercial for Sonic Drive-In's 99 cent Jr. Banana Splits dad kept mentioning them throughout the day, we kept promising him one and sure enough Dave delivered later that evening. However, the commercial is quite deceiving for the banana split on t.v. does not look at all like the real thing, Dad sure hopes Dave asked for his change! As we left late Saturday evening dad was exhausted as were we. Despite dad's current condition he remains concerned about his temple duties, scheduling responsibilities on Temple Square, and his horses. That's our dad.

The medical care that dad has been receiving has been phenomenal and we could not ask for more caring, compassionate, professional providers. We are surrounded with good people.

Sunday morning brought our family together once again; Marty and Teri, Matt, Cole, Tanner, Jeff, Steph, Tucker, Peyton, Dave and myself joined Mom and Dad at the hospital early Sunday morning and took turns visiting, and laughing while trying to pass the anxiety filled hours prior to surgery. Michele, Carson and Madison arrived later that morning followed by Aunt Connie, Uncle Ted, Aunt Gayle and Uncle David. The waiting continued. Jeff, myself, Matt, and Marty were able to join mom and dad for a family prayer prior to dad going to OR and once again we were wrapped in the arms of the Comforter. As I stood there in that room I was amazed at the abundance of courage that my parents were exhibiting for their children to witness, it was clear that our father was not afraid of this storm for he knew how to sail his ship. His force of bravery was needed, felt, and acknowledged. As dad was being wheeled down the hall his request to see Madi and Carson was granted as a little parade of waves was held in his honor. We were able to visit with the Neurologist prior to surgery and he carefully explained what he anticipated finding once he got in there. Questions were answered, information provided, 4-5 hours of more waiting would now begin.

An OR nurse came out after about 4 hours and told us that Dr. Gaufin had just finished the surgery and that closing would now begin. Closing would take an additional hour and a half. The nurse indicated that dad had done well throughout the surgery, his heart had remained very stable and that she would return in an hour with another update. More waiting. Nearly two hours later Dr. Gaufin came out to talk to us and told us that he found what he thought he would once he got inside and that is a brain tumor characteristic of Glioblastoma. He did call in a Pathologist during surgery and both felt that this would be the final diagnosis. This cancer is the same type of cancer that Ted Kennedy has, dad is not going to be happy about sharing anything with a democrat! Dr. Gaufin said he was pleased with the surgery and even more pleased with how quickly dad awakened in recovery and that dad was awake and asking questions regarding the surgery while Dr. Gaufin was dictating his operative report, that's our dad.

Dr. Gaufin explained what the next couple of days would entail and what direction our journey would be taking us over the next little while. While much medical dialogue was exchanged the only word any of us really heard and understood was "cancer", shock and awe had now set in. We were sad, so very sad. Once again we find ourselves waiting, waiting, waiting, for the pathology report to return, it could take 3-4 days.

Many phone calls needed to be made, each of the children took a few names and began calling family and close friends while dad was being settled into ICU. Mom and the kids were able to see dad briefly as the nurse explained what his routine would be for the evening and encouraged each of us to go home for the night. We followed the nurses recommendation and took mom home for some much needed sleep, we have a fight on our hands and each of us are going to be strong and ready for battle.

We have been so impressed and touched by the abundant expressions of love, concern, and compassion for our family at this time. How grateful we are for a loving and caring Bishop, Stake President, sweet neighbors, friends, and co-workers. Our family knows that prayer is a powerful and sustaining influence and we have felt the strength of your prayers over the past few days.

Several have asked "what can we do?" At this time we are asking ourselves the same question. We believe that we received our answer for now in the blessing dad received last Thursday, we are exercising (and learning) patience, discovering peace, and standing up to cancer with courage and faith... we ask that you do the same.